Tuesday, May 4, 2010

Okay so today we realized that we haven't given an official list of everything that is wrong with our precious Tatum, so here goes; he has a cleft lip and pallet, abnormal outer ears, only one kidney, absent gall bladder, spinal deformation with a possibility of scoliosis, a heart condition called an unbalanced atrioventricular septal defect with decreased function of the right ventrical, a leaky av valve and aortic coarctation and aortic atresia (his heart is really sick). He also had a tracheoesophgeal fistula (tef) that was repaired when he was 3 days old. He now has developed chylothorax. He also has developed asides in his abdomen. Having mentioned all that we would be ungrateful if we failed to mention all that is right with him. He has the most beautiful eyes that we have ever seen. They look deep blue like the sea, but the depth is more than just the color. It's a depth of emotion and feeling and passion and desire and most of all love. He has ten fingers and ten toes and two feet that would intimidate Bigfoot. His skin on a good day is pink and beautiful and rosy, and the spirit that Tatum is, in that little body, defies description. When I think of it the words that come to mind are; powerful, peaceful, strong, calm, loving, pure, and compassionate. He has consumed our thoughts and our hearts as we fall more in love with him every day and he has turned our world upside down and we feel so blessed that he chose to come to us and let us be a part of this miracle that is Tatum. Despite all his physical disadvantages, to us, he is perfect.

7 comments:

  1. He is perfect and a miracle. We are thinking of you quite often. My family also has you in their prayers and is reminded of how precious life is. We love you and your family.

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  2. You are an amazing mother and you have an amazing family. You are as strong as they come, you and your family are in my thoughts and prayers as you go through this hard time. Your up-date today was one of a kind and shows just how amazing you are, hang in there.

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  3. That is a beautiful description of such a sweet spirit. I have fallen in love with him and hope to meet him someday. You are so amazing, Your whole family is lucky to have you, I know there are times you feel worn down, so we are here to be your strength and buoy you up as you try to lift everyone else ALL the time. Lots of love and prayers.

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  4. What an amazing little man you guys have brought to your family! He gets ALL of his traits from both you and Brandon! Remember that always! I love you guys, thanks for being so strong and loving and adding such a great little spirit to our family!

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  5. What an amazing little man you have brought into your family! He gets ALL of his traits from both you and Brandon! Please remember that always! Thank you for bringing such a sweet little spirit into our family! We will be forever changed!

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  6. Wow. Beautiful!

    I just saw a link on facebook from Blaire and had to come check it out. I had no idea! (I also just figured out from pictures that your parents are in my dad and brother's ward!) Anyways...what a tough time for you! I live so close to Primary's and we come there often so PLEASE, even if it's just bringing you a meal next time we're there, let me know if there's anything I can do to help!

    In the meantime, you're all in my thoughts and prayers!

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  7. You are such an amazing example to all of us...I used to work with your dad and he told me about your trials and blessings so I have been following your blog. I love that you can find something positive out of such a trial. You have been in my prayers since the first day I looked at your blog and will continue in my prayers for strength and healing.

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