Tuesday, May 4, 2010
Okay so today we realized that we haven't given an official list of everything that is wrong with our precious Tatum, so here goes; he has a cleft lip and pallet, abnormal outer ears, only one kidney, absent gall bladder, spinal deformation with a possibility of scoliosis, a heart condition called an unbalanced atrioventricular septal defect with decreased function of the right ventrical, a leaky av valve and aortic coarctation and aortic atresia (his heart is really sick). He also had a tracheoesophgeal fistula (tef) that was repaired when he was 3 days old. He now has developed chylothorax. He also has developed asides in his abdomen. Having mentioned all that we would be ungrateful if we failed to mention all that is right with him. He has the most beautiful eyes that we have ever seen. They look deep blue like the sea, but the depth is more than just the color. It's a depth of emotion and feeling and passion and desire and most of all love. He has ten fingers and ten toes and two feet that would intimidate Bigfoot. His skin on a good day is pink and beautiful and rosy, and the spirit that Tatum is, in that little body, defies description. When I think of it the words that come to mind are; powerful, peaceful, strong, calm, loving, pure, and compassionate. He has consumed our thoughts and our hearts as we fall more in love with him every day and he has turned our world upside down and we feel so blessed that he chose to come to us and let us be a part of this miracle that is Tatum. Despite all his physical disadvantages, to us, he is perfect.